The Impact of HIV Infection on the Population’s Quality of Life in Regions
DOI:
https://doi.org/10.17059/2020-1-9Keywords:
quality of life, quality of life in medicine, health-related quality of life, quality of life index, HIV-AIDS infection, people living with HIV/AIDS level of well-being, physical health, psychological well-being, social well-being, measurement of quality of life, quality of life of patients with HIV infectionAbstract
Assessment of quality of life of patients with HIV infection is of great importance due to the unfavourable epidemic situation with this disease both in the Russian Federation in general and in the Sverdlovsk region. This chronic disease, accompanied by long-term therapy and medical supervision, has adverse effects on lives of people carrying HIV/AIDS. Additionally, it negatively impacts the functioning of all spheres of the society. In the autumn of 2018, we studied the populations quality of life in the Sverdlovsk region using the methodology of the World Health Organization (the WHOQOL-26 questionnaire). This questionnaire considers quality of life as an integral characteristic of physical, psychological, emotional, and social functioning of a healthy or sick person based on subjective perception. We added specific questions in the questionnaire to assess how the quality of life of a person with a positive HIV status changes depending on whether the respondent receives antiretroviral therapy. The sample included patients visiting branches of the Sverdlovsk Regional Center for Prevention and Control of AIDS. The quality of life of the survey participants was assessed in four dimensions: physical health, psychological well-being social connections and the environment. The majority of HIV patients assess their quality of life and health by means of averages. However, according to the “physical health” and “social well-being” measurements, the quality of life of people living with HIV/AIDS is lower than in the control group of healthy respondents. The study’s residts demonstrate the importance of developing and implementing a program of professional and socio-economic rehabilitation for people who carry HIV/AIDS to maintain social functioning and optimal quality of life.References
Boytsov, B. V. & Kryanev, Yu. V. (1999). Sistemnaya tselostnost kachestva zhizni [Systemic integrity of the quality of life]. Standarty I kachestvo [Standards and quality], 5, 20–27. (In Russ.)
Evsina, O. V. (2013). Kachestvo zhizni v meditsine — vazhnyy pokazatel sostoyaniya zdorovya patsienta (obzor literatury) [The quality of life in medicine is an important indicator of the patient’s health status (literature review)]. Lichnost v menyayushchemsya mire: zdorovye, adaptatsiya, razvitiye [Personality in a changing world: health, adaptation, development], Retrieved from: http://humjournal.rzgmu.ru/art&id=24 (Date of access: 20.04.2019). (In Russ.)
Ulyukin, I. M. & Lobzin, Yu. V. (2003). Kachestvo zhizni bolnykh VICh-infektsiyey [Quality of life of patients with HIV infection]. Obzory po klinicheskoy farmakologii i lekarstvennoy terapii [Reviews on clinical pharmacology and drug therapy], 2(2), 58–65. (In Russ.)
Nechaeva, O. B. & Podymova, A. S. (2018). Vliyanie VICh-infektsii na demograficheskuyu situatsiyu v Rossii [Impact of HIV infection on demographic situation in Russia]. Meditsinskiy alyans [Medical Alliance], 1, 6–16. (In Russ.)
Podymova, A. S., Baskakova, I. V. & Balandina, M. S. (2018). Otsenka sotsialno-ekonomicheskikh poter ot prezh- devremennoy smertnosti naseleniya ot VICh-infektsii [Evaluation of Social and Economic Losses from Premature Mortality caused by HIV Infection]. Ekonomika regiona [Economy of Region], 14(4), 1341–1355. DOI: 10.17059/2018–4–22. (In Russ.)
Ormel, J., Lindenberg, S., Steverink, N. & Vonkorff, M. (1997). Quality of life and social production functions: A frame- work for understanding health effects. Social Science Medicine, 45(7), 1051–1063. DOI: 10.1016/s0277–9536(97)00032–4.
Yuan, L., Yuen, B. & Low, C. (1999). Quality of Life in Cities — Definition, Approaches and Research. In: L. Yuan, B. Yuen, C. Low (Eds.), Urban quality of life. Critical issues and options (pp.1–13). Singapore: School of Building and Real Estate, National University of Singapore.
Smith, A. E. (2000). Quality of life: a review. Education and Ageing, 15, 419–435.
Wunsch, D. & Risser, R. (2002). Lebensqualität: Definitionen — Konzepte (Life quality — definition and concepts). Referat am BDP-Kongress für Verkehrspsychologie. Regensburg, 56.
Ferrans, C. E. & Powers, M. J. (1985). Quality of life index: development and psychometric properties. Advances in Nursing Science, 8, 15–24.
Gill, T. M. & Feinstein, A. R. (1994). A critical appraisal of the quality of quality-of-life measurements. The Journal of the American Medical Association, 272(8), 619–626. DOI: 10.1001/jama.1994.03520080061045.
Novik, A. A. & Ionova, T. I. (2007). Rukovodstvo po issledovaniyu kachestva zhizni v meditsine. 2 izdanie [Guide to the study of the quality of life in medicine. 2nd edition]. Moscow: ZAO «Olma Media Grupp», 320. (In Russ.)
Belevskiy, A. S. & Senkevich, N. Yu. (2000). Kachestvo zhizni — predmet nauchnykh issledovaniy v pulmonologii [Quality of life — a subject of scientific research in pulmonology]. Terapevticheskiy Arkhiv [Therapeutic Archive], 72(3), 36–41. (In Russ.)
Schipper, H., Clinch, J. J. & Olweny, C. L. M. (1996). Quality of life studies: Definitions and conceptual issues. In: Spilker B. (Ed.), Quality of Life and Pharmacoeconomics in Clinical Trial, 2nd ed. (pp. 11–23). New York: Lippincott-Raven.
Snoek, F. J. (2000). Quality of life: A closer look at measuring patients’ well-being. Diabetes Spectrum, 13(1), 24–28.
Ruževičius, J. (2012). Management de la qualité. Notion globaleetrecherche en la matière. Vilnius: Maison d’éditions Akademinė leidyba, 432.
McSweeny, A. J., Grant, I., Heaton, R. K., Adams, K. M. & Timms, R. M. (1982). Life quality of patients with chronic ob- structive pulmonary disease. Archives of internal medicine, 142(3), 473–478. DOI: 10.1001/archinte.1982.00340160057014
Lloyd, K. M. & Auld, C. J. (2002). The role of leisure in determining quality of life: Issues of content and measurement. Social Indicators Research, 57(1), 43–71. DOI: 10.1023/A:1013879518210.
Kaplan, R M. (1998). Profile versus utility based measures of outcome for clinical trials. In: M. J. Staquet, R. D. Hays, P. M. Fayers (Eds.), Quality of Life Assessment in Clinical Trials: Methods and Practice (pp. 69–90). New York: Oxford University Press.
Novik A. A. & Ionova T. I. (2002). Rukovodstvo po issledovaniyu kachestva zhizni v meditsine [Guide to the study of the quality of life in medicine]. Moscow: OLMA-PRESS, 314. (In Russ.)
Novik, A. A., Ionova, T. I. & Kaynd, P. (1999). Kontseptsiya issledovaniya kachestva zhizni v meditsine [The concept of the study of quality of life in medicine]. Saint Petersburg: Elbi, 140. (In Russ.)
Fakhoury W. K. H. & Priebe, S. (2002). Subjective quality of life: Its association with other constructs. International Review of Psychiatry, 14(3), 219–224. DOI: 10.1080/09540260220144957
Rogerson, R. (1999). Quality of life, place and the global city. In: L. Yuan, B. Yuen, C. Low (Eds.), Urban quality of life. Critical issues and options (pp. 13–31). Singapore: School of Building and Real Estate, National University of Singapore.
Talukdar, A., Ghosal, M. K., Sanyal, D., Talukdar, P. S., Guha, P., Guha, S. K. & Basu, S. (2012). Determinants of Quality of Life in HIV-Infected Patients Receiving Highly Active Antiretroviral Treatment at a Medical College ART Center in Kolkata, India. Journal of the International Association of Providers of AIDS Care (JIAPAC), 12(4), 284–290. DOI: 10.1177/1545109712445924.
Filonenko, N. G. (2009). Nauchnoe obosnovanie osnovnylh napravleniy povyshenya kachestva zhizni VICH- infitsirovannykh. Avtoreferat dissertatsii kandidata meditsinskikh nauk [Scientific substantiation of the main directions of improving the quality of life of HIV-infected people. Abstract of the dissertation of the PhD in Medicine]. Moscow: National Research Institute of Public Health RAMS, 26. (In Russ.)
Downloads
Published
How to Cite
Issue
Section
License
Copyright (c) 2020 Irina Vladimirovna Baskakova, Anzhelika Sergeevna Podymova, Irina Dmitrievna Turgel, Marina Sergeevna Balandina
This work is licensed under a Creative Commons Attribution 4.0 International License.
